|This is what Mommy feels like doing on a daily basis lately.... JEALOUS! :-)|
Case in point: The Phillips' Family
I've been so excited about the month of May. While there were some things going on, it was supposed to be a month of simplifying, a month of getting caught up.
We only had ONE doctor appointment scheduled for the WHOLE ENTIRE MONTH. That has never happened before...
And I got the final word from her therapists that it was going to work to change therapy to all be on ONE day come the middle of the month, so we would only be making the drive to Nashville once a week! THis was HUGE!
But then last week happened.
--->My mom was admitted into the hospital on Friday (she was released to go home today, but prayer for her healing is appreciated!!)
--->Our garage sale my sister had at her house was rained out Saturday morning... so while we put it out after the rain stopped... the showing was dismal so we'll have to do it again later
--->And finally, I got a call on Friday from the Pulmonologist with some super bad news. When I first heard his voice, I was SO excited. I just knew he was going to say, "Wow! She just did amazing! Don't worry about oxygen anymore!"
Instead, it was "Well... Annabelle's results were not what we were hoping for."
Punch. To. Gut. I literally started shaking. Then my next thought was... He's joking. Like, being sarcastic and going to say, "They were much BETTER than we could have hoped!"
But my hopes were shortly dashed.
Annabelle's sleep study did NOT go well. Her results were extremely abnormal. She has severe obstructive sleep apnea, meaning that she is initiating breathing at a regular rate (A GOOD THING) but when she does it, something is blocking the air from actually getting to her lungs, an obvious BAD thing. An acceptable # of episodes is 2 or under. They MIGHT except 3 if she's keeping her SAT's up. But 4 or more are not acceptable under any circumstance. Annabelle had 9.
So, we are back on having sleeping oxygen regardless of her oxygen saturation at home until we can figure out what to do, although this fixes nothing... just helps minimize the damage by ensuring she keeps adequate O2 saturations.
Their first course of action will be to do a bronchoscopy. She had one done a LONG time ago when we were having trouble keeping her off the ventilator in the hospital, but that was November 2010. At the time, she was diagnosed with moderate left-sided bronchomalacia (basically floppy bronchial tubes) and they recommended a trach, which my husband and I (as well as her cardiology team) disagreed with, which I am SUPER glad of now.
In this new scope, they will check to see if the bronchomalacia is still an issue, ensure she hasn't developed tracheomalacia (floppy trachea), and will also check the size of her tonsils/adenoids.
Their HOPE is that it's just an issue of her tonsils/adenoids being enlarged, and that they can take them out (they will have ENT there and would do the surgery at the same time as the bronch if needed) and that will fix the problem.
Although surgery is one of the last things I want to think about at this point, the alternatives are NOT things I want to contemplate at this point. First of which, is an at-home CPAP machine for sleeping. Last of which is the "T" word again, which I've already said is NOT an option. She is breathing 96% of the time just fine. She is growing and almost walking and is super active. I believe the risk of infection and quality of life issues, as well as the fact that she will likely outgrow this in the near future, make the "T" word even ridiculous to bring up as any type of option, last or not.
All this to say... our May is shaping up to involve another surgery (date unknown, but he said it should be in the next few weeks.)
And did I mention that I have my sister's baby shower to plan that is on the 20th??
As well as my final proof edits due on my Sandwich book this month on the 21st??
And that my children have softball practice/games almost every single day of the week from now till the end of the month... sometimes two in the same night?????
It's a super good thing this Momma doesn't drink alcohol. I know some might say a glass of wine might help, but if my inhalation of Dr. Pepper and chocolate during times of stress are any indication... it wouldn't be a pretty picture at my house if I allowed myself even a small sip.
So, how the heck do I simplify this month?
That is a super good question that I don't have an answer to.
Because sometimes... I'm realizing that you just plain can't. Sometimes everything that is on your plate, NEEDS to be on your plate, and you just revert back my tride-and-true 24 hour window philosophy. Handle what comes on a day-to-day basis with the strength God gives you to handle it, and trust that God will take care of the rest.
Oh, and you also multi-task. I guarantee you that I will be seen at many a softball game with pages of my book in hand along with a wonderful red pen. I can scream "GO TEAM" at the same time as I cross out a misspelled word with the best of them:-)
I'm also going to be doing some massive delegating to my "team" this month. So children... be prepared. Change is a'comin.
And whenever Annabelle's surgery comes... well, everything else will be dropped because a Momma has to have her priorities!!!
And prayer. There will be a lot of prayer going on in this house!
Radio Interview Update: It went okay... I think! You can listen to the podcast if you so desire here.... http://nicoleodell.com/choose-now-radio-parent-talk/ (the link is on the right-hand side)
A HUGE thanks to super awesome author and Super-Momma herself, Nicole O'Dell, for having me!!!
The winner is......
If you didn't win, you can get her super awesome book here or at your local bookstore! Tomorrow is her official "release" date! YEAH!
I Couldn't Love You More. A portion of the proceeds from the book go to his amazing foundation, Whole Hearts Foundation, that supports heart families and research for Congenital Heart Defects.