|Momma and Annabelle...
not sure why my nose looks red....
No momma ever imagines doing so with a 10-month-old.
But a year ago yesterday, I did exactly that. Oh how sweet. Oh how wonderful.
Oh how EVER-LOVIN' SCARY!
Our coming home was definitely a-typical. We were on 24hour oxygen support. Continuous gtube feeds over night and most of the day. The little girl we brought home was still very sick (sicker than we realized, actually.)
She taught me to cherish every moment being home (although there are still moments even this Momma needs a little escape!)
She has forced me to get on a schedule, something I never really liked the thought of.
She's challenged my patience, my ability to function on no sleep, and gave me my first opportunity to call 911 and ride in a helicopter. (I've promised her a cool helicopter ride when she's older if she never pulls that one again!)
I'm a pro at changing gtubes out (even though I still HATE THAT one) and I could make meds in my sleep if I had to.
She came home on 20 medications... she's finally down to 9. PROGRESS folks!
She came home on 24 hour oxygen at 1/2 liter, and is down to night oxygen only at 1/8th liter (and hopefully that will not be needed after we say bye-bye to tonsils!)
She came home unable to support her weight in anyway and unable to roll over. She now clocked TWENTY... count them TWENTY AMAZING WONDERFUL GLORIOUS steps at PT on Wednesday! We also tested her out on the stairs just to see how she did... we'd never tried it before. What did my baby do? Climbed up the whole flippin' set of stairs! (Then tried to dive down head first, but that's beside the point!)
She's made all this fabulous progress being HOME!
But another thing Annabelle has reminded me of is this: Our earthly home is temporary. Heaven is our "ultimate" goal-home.
|05/24/12 - My own bed still.AH!|
Thriving and living and being Jesus' light wherever He allows you to lay your head.
I pray every day that we get to stay "home" with Annabelle, that our hospital days are few and far between in the future. But I also pray that we'll remember that four walls can't contain us, they don't define or limit our level of joy.
Thank you, Jesus, today, for bringing my baby home. Because another thing Annabelle has taught me is to be thankful... because too many of her heart friends skipped an earthly 4-walled home and went to Jesus' arms to be taken to their permanent home... causing those sweet, wonderful, loving parents to have to go "home" with empty arms.
|Holy crap, Mom, there's a monster behind you!|
|HA HA, made ya look!|
|I'm a big girl now... crawling on your knees is for babies!!|
|I have a tongue!|
|I can stick it out this way...|
|And that way....|
|It's a pretty cool tongue, I must say.|
|Look, I can WALK to Momma!! Still perfecting it though... (and she proceeded to dive headfirst into the camera right after I clicked the button!)|
|I. MUST. CHEW. (Teeth much?)|
|Last minute grueling PT session with Miss Paige... All 4's were NOT a favorite of Annabelle's! But she loved her some Miss Paige!!!|
|My wagon and my dolly, let's get this SHOW ON THE ROAD!|
|The princess's chariot....|
|Alright, this is more like it!|
|05/24/11 - My first night in my own bed... well, my own port-a-crib anyway. Momma made me sleep there for quite a while before I graduated to my REAL crib, but it was okay. It was still HOME!!!!!!!!!|