Thursday, May 19, 2011

A plan! A plan! We have a plan!!!!!

SO SO SO excited this morning. (see late last night's post about God giving me HOME hope!)

The cardiologist came in this morning and I made a sarcastic note that we might be celebrating her 3rd birthday here because she refuses to stay off oxygen for any long period of time!

She said, yeah, she was rethinking her original plan.

Because it's quite evident that Annabelle has at least a mild form of chronic lung disease, we may be stressing her too much by trying to wean her from it too soon. So, they are considering letting her go home on oxygen!

Now, I really don't WANT to go home on oxygen. It's a pain in the butt. But we are "house bound" for the most part anyway for the next month or two except for clinic visits, so it's not like we're going to be carting oxygen around walmart or the mall or anything.

Just talked to pulmonologists (aka lung doctors) and they are going to try a few things to help over the weekend, but are okay with her going home on oxygen too.

SO!

OH MY GOODNESS. I'm excited.

I just talked to my hubby and told him our planned "go home date." Now, yesterday's post I noted that God had really confirmed to me (like at 12:30 in the morning...) we are going home SOON, and even though she had gone back on oxygen, I was filled with hope.

Evidently last night, my daughters had been discussing Annabelle's homecoming. Someone suggested maybe Monday, but Lacy was adament that it was going to be Tuesday (mostly because it is a half-day of school so they would be able to be home when Annabelle got there...) They even wrote it on our marker calendar board at home last night!

Guess when the doctor told us our go home day might be this morning?

TUESDAY!!!

How cool is that? God is SO SO SO amazing!

So we are planning on Tuesday. EEEEEEEEEeeeeEEEE!

I'm just a little excited! Okay a LOT excited!

26 comments:

Casey said...

God is AMAZING! Praying that Tuesday it is!! :D

Rachel said...

Yay!!!!!

Danna said...

Yay!!! So exciting!!!

Karen Lange said...

Yay! I thought I heard happy squealing from your general direction!

Will keep praying for you all.
Blessings,
Karen

Amy Bennett said...

Oh wow wow wow! Praise God!!! You know, we took Bodie home on O2 after his Norwood. It was different because he was only 2 months old so not mobile and Annabelle is much older - but it actually wasn't as bad as I expected. You'll be surprised how quickly you get used to it. :-)

Elizabeth Ridout said...

Awesome news!!! Going home on oxygen really isn't horrible. Especially if they just give you the concentrator box for at home. It changes room air to the oxygen she will need so it never runs out. the travel tanks aren't so bad but can be a pain in the butt if you let yourself get down to the last one...lol, oops i'm guilty of that a time or two! Simon was on oxygen his whole first 10 1/2 months of life and still occasionally needs it. You get used to it and its a small price when it means Annabelle will finally get to go home to her family!!! :) Praise the Lord!!!

Krista Phillips said...

Amy... yeah, we were going to go home on oxygen in December when we were set to go home Christmas Eve (she ran a fever so it never happened) but since she has a "whole" heart now, they have said all along that there should be no medical reason for her to need oxygen, so they weren't willing to let her go home on it.

But now they are succumming to the reality that Annabelle likes to follow no ones "normal." I think we can handle it for a little while, and really if we do go home on it, I don't think it will be for very long.

Sarah Forgrave said...

Wow!!! See, only God can write a novel like this. Talk about twists and turns! :)

Melinda said...

So, so, so happy for you!!! The faith of little children is amazing!

Linda said...

Absolutely excited for you! Yay Annabelle! We will continue to pray and will rejoice with you on that day! Hugs :o)
The Rojas'

Sherrinda said...

Squeeeeeee!!!!!!

Out of the mouth of babes...I love it, Krista! You must be flying high!

Riete said...

Did you hear my EEEeeeEEEE? It should have been loud enough to be heard on your side of the big pond :)
It would be so awesome to go home on Tuesday!
Praying all will stay well so you will have your whole family home again!

Anonymous said...

We're still praying -- and thanking God along with you!
- George Schroeder (Christopher's dad)

Christin said...

How awesome is that?! I'm SO excited for you guys! It's about time Annabelle went home! At least if she goes home with oxygen, you don't have to worry about the possibility of her having to go back to the hospital to get it. Praise God!

Linda Glaz said...

So happy for you, Krista!

Fishers of Men said...

Awesome, praise the Lord! We will keep praying! Can't wait to see pictures from home!

Amy said...

AMAZING... I have chills. What an AWESOME God we serve! Prayers continue from your fellow heart family! www.elladawn.blogspot.com

Tammi T. said...

Yes, yes, yes, yes! God is sooo good! I know I can't wait ... I can't imagine how you must be feeling!

Keli Gwyn said...

Soooo happy for you and your family.

Jenny Lincoln said...

FANTASTIC!!! That's such wonderful news!! :) :)

Cindy R. Wilson said...

Krista, I am so happy for you and your family and the wonderful news! I'll keep praying that things go smoothly and you get to see your little girl home soon :)

Anonymous said...

I am so thrilled to read about your exciting news! Your family deserves to be home TOGETHER :) Continued prayers from The Longs!
Kelli (from Nebraska)

Sarah hammit said...

Oh my goodness!!! So excited for you all:) XO

Melinda Lancaster said...

Praying this goes off without a hutch! Super excited for all you. There is no place like home!

Jaclyn said...

That is so exciting. The oxygen isn't that bad. I had triplets and they all came home on oxygen and apena monitors. Course I am sure your daughter has alot more meds then we did. We used portable tanks when we went out and then they had a bigger one when at home but it was in a cart. The hardest thing was trying to keep them untangled. With everything you have been through I am sure you guys will do great with the oxygen.

Wendy Delfosse said...

CONGRATS!!!!!!!!!! Really excited for y'all!!!