What a day!
We had our first clinic visit today. *sigh*
First, as we were trying to get ready to leave, Annabelle had a spell. She was coughing a lot, and she sounded really really junky, which isn't good for her, and just looked pretty pale and ucky. I hooked her up to her pulse oximeter and her SATS were low 80's and dipping occasionally to high 70's. NOT good for a heart transplant baby that should have >90's (preferrably >93) SATS.
What I REALLY needed to do is spend some time holding her, beating on her back, and trying to unclog the gunk in her lungs. But we needed to leave for clinic, and I was worried that maybe something WAS wrong, so we upped her O2 to the point where she was in high 80's at least, and packed her, her feed pump, her oxygen, and her oximeter in the car and rushed to the hospital. I was nervous to say the least!
But she was had better color by the time we got to the hospital, and when they checked her, she was SATing 100, so WOOHOO for that! She was still junky, but even while we were at the hospital, she was slowly improving.
I was SO nervous that they wouldn't let us go home, but they did.
However, the doctor just called back. The labs they took weren't great at all. She asked a bunch of questions, and said we could stay here, but to come back to the ER tonight if anything looked fishy at all, and we have an appointment at 1:00 tomorrow, but can come in earlier if we are worried.
We are making 2 pretty big changes to her meds tonight to try to help her electrolytes get better by tomorrow. PLEASE PLEASE pray that the changes make the desired effects! One of them is cutting her night-time dose of lasix. Please pray that this helps and doesn't make her MORE junky (Lasix helps her rid her body of fluid so it doesn't build up in her lungs... it is really important with her chronic lung disease.)
I'm a little nervous if they aren't better tomorrow, that they might want to admit us for the weekend. We can't go to get "rechecked" over the weekend, and since it is a long weekend with a monday holiday...
Other than that, we had a good day! (I want to laugh right now typing that!)
I took a LITTLE nap after we got home, maybe an hour, but at least I slept for probably the longest period of time since coming home. Annabelle took a GREAT nap too. She fell asleep on the way home from the hospital (2ish), and slept till 6:30!
No pictures... hopefully will post some tomorrow... Too many things to do!! But she's cute... I PROMISE!