A month and a half on the transplant list. Yikes!
Annabelle is doing so-so.
On a positive note, she is sleeping well, is generally happy, is doing well with PT/OT (Physical Therapy/Occupational Therapy,) had has the most organized room in the ICU thanks go our wonderful nurses (and a new plastic bin from target!)
On a negative note, she is having fevers more persistently, and we aren't sure why. On Thursday she ran a fever ALL day. We gave her Tylenol twice, and it only climbed higher. That evening, we gave her motrin, and it finally broke, just to reappear again in the early morning. Friday during the day, she was mostly fever free, but she ran another fever of 102 this morning.
We've sent every culture imaginable, viral swabs in her eye, nose, mouth, and urine/rectum cultures, as well as blood cultures. So far, no growth. Her CRP and CBC numbers (the blood tests that show elevated numbers like white blood count that are a sign of infection or that your body is fighting off an germ) are all low.
The doctors still think she may have some kind of virus in there, however there is still the real possibility that our "heart" fevers of December/January, the ones that kept us in the hospital for Christmas, are back.
As a mom, this prospect is scary. Also, on Thursday, her BNP number (again from a blood test) was VERY high. A normal BNP for a non-heart patient is well under 200 (depends on age and other factors.) For the last month, Annabelle's have ranged from 500 to 1500. This number indicates her degree of heart failure.
Her number on Thursday had bumped from 1000 to almost 3000.
She has been this high before and it's come down, so I'm anxious to see the number when we retake it on Monday. If it is still elevated or higher, this will be a pretty not-great sign.
Medical detail stuff aside, we are just praying for a heart really soon. I know I say that every post, but every day it gets a tad bit more urgent, more scary.
On a GOOD note, my GABBY comes back this next week on Thursday! I miss her SO SO SO SO SO much, I can hardly stand it! Everytime I'm able to skype with her, my arms ache to scoop her up and smother her with hugs and kisses. I feel like she's starting to get "used" to not being here with us, and while I am SO thankful that she is doing well, her home is here, and my heart aches. It really really does.
Also, my little Lacy turns SEVEN next Friday. It's gonna be a busy, fun week... although I'll gladly add "new heart" to the weeks festivities!
On a separate note, are you allowed to have unspoken prayer requests on a blog? If so, I have one, that I don't really care to broadcast to the world, but it is a situation near and dear to my heart, and I'm in a lot of prayer over.
THANK YOU everyone!!! Blessings to you, and to God be ALL the Glory!
Karalynn and Lacy with Annabelle tonight! They love their little sister, and Annabelle loves her big sisters!
I love this pic for 2 reasons. First, Annabelle took her binky out of her mouth and is examining it very closely. Second, Karalynn is giving bunny ears. Very classic Phillips' family!
Annabelle LOVES being on her belly. I still think she's praying for her heart... her little alter:-)
Daddy and Annabelle snuggling! He officially rocked her to "conked" land!